Sickle Cell Society 

The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.

NHS Overview

Find out more regarding the NHS treatment options, diagnostic methods and management.

Really helpful to guide your discussions with your healthcare provider, especially your primary provider such as your GP

NICE Guidelines

This guideline covers how healthcare professionals should be managing acute painful sickle cell episodes in children, young people and adults who present at hospital, from presentation until when they are discharged. It aims to reduce variation in how acute episodes are managed in hospital, focusing on effective, prompt and safe pain relief.

There is a patient/public outline

The Red Cell Network

The Red Cell Network (TRCN), led by University College London Hospitals NHS Foundation Trust aims to support the provision of specialist and non-specialist haemoglobinopathy services to adults and children with sickle cell disorder, thalassaemia and other rare inherited anaemias.
 

The website provides bitesize education sessions and training resources for free and for all.

They also worked with advocates including myself to create a new patient's guide to living with sickle cell disorder - PATIENT HUB

The Kings Fund

The King's Fund is an independent charitable organisation working to improve health and care in England. They do some amazing work and always work to raise awareness of inequalities, where we can make improvements and changes within healthcare.

National Heart, Lung and Blood Institute

A US site with resources, patient information and current research information.

Research, progress and programmes ​

Heart, Lung and blood education resources

Sanius Health

Developing insights to revolutionise healthcare.

Blending genomics, records, monitoring and phenotype data, Sanius delivers deepening health insights that drive better outcomes as well as clinical research and drug discovery. They aim to develop health understanding for patients, healthcare providers and research.

They are also running a healthcare watch programme for patients with SCD