One of the complications of HbSC disease is something known as avascular necrosis (AVN) or osteonecrosis. This basically means death of part of or all of the bone due to an inadequate blood supply.
Missy here, was lucky to have been diagnosed with AVN in the top of the head of my right femur completely accidentally (see picture below). I went into A&E with a pain episode brought about by an old back injury. The pain was referring down my left leg so as a precaution, they took a hip X-ray. The report stated markedly deteriorated changes of AVN in the right femoral head over the last 14 months. It was a complete shock because at this point, I was still playing netball, I had not had any pain or problems in the right hip at all. I was referred to the orthopaedic clinic and had MRI and CT scans also.
After a few consultations and a multi-disciplinary team meeting, it was decided that the best option was to try to encourage the bone to re-vascularise by disrupting it with a technique called core decompression surgery (see picture below). I had to stop playing netball in Oct 2018 to avoid injury such as fractures as the bone was compromised. I was initially diagnosed in July and trailed and was able to play regional netball bit between then and being forced to stop in Oct.
So here I am, just under a fortnight since, 3x6mm diameter holes (yes, with a drill) and stitches later I am hoping the surgery helps. In order for it to be successful, I am not allowed to weight-bear on my right leg, hence the crutches and the chair! For those of you who know me, yes it is incredibly frustrating, yes I am being good and not weight-bearing, and no, hopping on my good leg is not considered weight-bearing so I will do that when I can to help.
I'm hoping all the frustration will be worth it! I'm missing just basic exercise not to mention netball and my club Cottenham Jaguars. I've found it pretty hard so had to stop going to watch the girl play and just met up during socials.
If you'd like to know more technical stuff about it all, you can find come resources below.
Useful links and information:
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